Rationale and study protocol of ACQUIRE, a prospective, observational study measuring quality of life, treatment preference and treatment satisfaction of autosomal dominant polycystic kidney disease (ADPKD) patients in Europe

BACKGROUND: Autosomal dominant polycystic kidney disease (ADPKD) is considered the most common inherited renal disease. Patient-Reported Outcomes (PROs) and patient experience in ADPKD are difficult to quantify and have not been well studied, particularly in the early stages of the disease. There is...

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Detalles Bibliográficos
Autores principales: Joly, Dominique, Quinn, Jennifer, Mokiou, Stella, O’Reilly, Karl, Sánchez-Covisa, Joaquín, Wang-Silvanto, Jing, Doll, Helen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Study Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7379359/
https://www.ncbi.nlm.nih.gov/pubmed/32709218
http://dx.doi.org/10.1186/s12882-020-01927-1

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7379359/
https://www.ncbi.nlm.nih.gov/pubmed/32709218
http://dx.doi.org/10.1186/s12882-020-01927-1

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