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Rationale and study protocol of ACQUIRE, a prospective, observational study measuring quality of life, treatment preference and treatment satisfaction of autosomal dominant polycystic kidney disease (ADPKD) patients in Europe
BACKGROUND: Autosomal dominant polycystic kidney disease (ADPKD) is considered the most common inherited renal disease. Patient-Reported Outcomes (PROs) and patient experience in ADPKD are difficult to quantify and have not been well studied, particularly in the early stages of the disease. There is...
Autores principales: | Joly, Dominique, Quinn, Jennifer, Mokiou, Stella, O’Reilly, Karl, Sánchez-Covisa, Joaquín, Wang-Silvanto, Jing, Doll, Helen |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7379359/ https://www.ncbi.nlm.nih.gov/pubmed/32709218 http://dx.doi.org/10.1186/s12882-020-01927-1 |
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