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Data protection and ethics requirements for multisite research with health data: a comparative examination of legislative governance frameworks and the role of data protection technologies

Personalised medicine can improve both public and individual health by providing targeted preventative and therapeutic healthcare. However, patient health data must be shared between institutions and across jurisdictions for the benefits of personalised medicine to be realised. Whilst data protectio...

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Detalles Bibliográficos
Autores principales: Scheibner, James, Ienca, Marcello, Kechagia, Sotiria, Troncoso-Pastoriza, Juan Ramon, Raisaro, Jean Louis, Hubaux, Jean-Pierre, Fellay, Jacques, Vayena, Effy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7381977/
https://www.ncbi.nlm.nih.gov/pubmed/32733683
http://dx.doi.org/10.1093/jlb/lsaa010