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Data protection and ethics requirements for multisite research with health data: a comparative examination of legislative governance frameworks and the role of data protection technologies
Personalised medicine can improve both public and individual health by providing targeted preventative and therapeutic healthcare. However, patient health data must be shared between institutions and across jurisdictions for the benefits of personalised medicine to be realised. Whilst data protectio...
Autores principales: | Scheibner, James, Ienca, Marcello, Kechagia, Sotiria, Troncoso-Pastoriza, Juan Ramon, Raisaro, Jean Louis, Hubaux, Jean-Pierre, Fellay, Jacques, Vayena, Effy |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Oxford University Press
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7381977/ https://www.ncbi.nlm.nih.gov/pubmed/32733683 http://dx.doi.org/10.1093/jlb/lsaa010 |
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