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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World

Physician–patient collaboration was recognized as a critical core of participatory medicine more than a century ago. However, the subsequent focus on scientific research to enable cures and increased dominance of physicians in health care subordinated patients to a passive role. This paternalistic m...

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Detalles Bibliográficos
Autores principales: Poduri, Annapurna, Devinsky, Orrin, Tabacinic, Miriam, Jadad, Alejandro R
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434078/
https://www.ncbi.nlm.nih.gov/pubmed/33064105
http://dx.doi.org/10.2196/17602