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Experiencing Positive Health, as a Family, While Living With a Rare Complex Disease: Bringing Participatory Medicine Through Collaborative Decision Making Into the Real World
Physician–patient collaboration was recognized as a critical core of participatory medicine more than a century ago. However, the subsequent focus on scientific research to enable cures and increased dominance of physicians in health care subordinated patients to a passive role. This paternalistic m...
Autores principales: | Poduri, Annapurna, Devinsky, Orrin, Tabacinic, Miriam, Jadad, Alejandro R |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7434078/ https://www.ncbi.nlm.nih.gov/pubmed/33064105 http://dx.doi.org/10.2196/17602 |
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