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Content Validation of the ATTR Amyloidosis Patient Symptom Survey: Findings from Patient and Clinician Cognitive Debriefing Interviews

PURPOSE: Amyloid transthyretin (ATTR) amyloidosis is a rare, progressive, and fatal disease. The ATTR Patient Symptom Survey (ATTR-PSS) was previously developed through literature review and concept elicitation input from clinicians and patients and revised after evaluation by a patient focus group....

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Detalles Bibliográficos
Autores principales: Rizio, Avery A, Broderick, Lynne E, White, Michelle K, Quock, Tiffany P
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Dove 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7457571/
https://www.ncbi.nlm.nih.gov/pubmed/32904695
http://dx.doi.org/10.2147/PROM.S264034