Qualitative Interviews to Better Understand the Patient Experience and Evaluate Patient-Reported Outcomes (PRO) in RLBP1 Retinitis Pigmentosa (RLBP1 RP)

INTRODUCTION: RLBP1 RP is an autosomal recessive form of retinitis pigmentosa (RP), characterized by night blindness, prolonged dark adaptation, constricted visual fields and impaired macular function. This study aimed to better understand the patient experience of RLBP1 RP and evaluate the content...

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Detalles Bibliográficos
Autores principales: Green, Jane, Tolley, Chloe, Bentley, Sarah, Arbuckle, Rob, Burstedt, Marie, Whelan, James, Holopigian, Karen, Stasi, Kali, Sloesen, Brigitte, Spera, Claudio, Deslandes, Jean-Yves, Mullins, Anmol
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Healthcare 2020
Materias:
Original Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7467452/
https://www.ncbi.nlm.nih.gov/pubmed/32372289
http://dx.doi.org/10.1007/s12325-020-01275-4

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7467452/
https://www.ncbi.nlm.nih.gov/pubmed/32372289
http://dx.doi.org/10.1007/s12325-020-01275-4

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