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Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements
In phenylketonuria (PKU), variable dietary advice provided by health professionals and social media leads to uncertainty for patients/caregivers reliant on accurate, evidence based dietary information. Over four years, 112 consensus statements concerning the allocation of foods in a low phenylalanin...
Autores principales: | , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
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MDPI
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7468820/ https://www.ncbi.nlm.nih.gov/pubmed/32722073 http://dx.doi.org/10.3390/nu12082205 |
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author | Evans, Sharon Adam, Sarah Adams, Sandra Allen, Heather Ashmore, Catherine Bailey, Sarah Banks, Janette Churchill, Harriet Cochrane, Barbara Cook, Jennifer Dale, Clare Daly, Anne Dixon, Marjorie Dunlop, Carolyn Ellerton, Charlotte Emm, Anita Firman, Sarah Ford, Suzanne French, Moira Gribben, Joanna Grimsley, Anne Herlihy, Ide Hill, Melanie Judd, Shirley Lang, Karen Males, Jo McDonald, Joy McStravick, Nicola Millington, Chloe Newby, Camille Noble, Catharine Pereira, Rachel Pinto, Alex Robertson, Louise Robotham, Abigail Ross, Kathleen Singleton, Kath Skeath, Rachel Terry, Allyson Van Wyk, Karen White, Fiona White, Lucy Wildgoose, Jo Woodall, Alison MacDonald, Anita |
author_facet | Evans, Sharon Adam, Sarah Adams, Sandra Allen, Heather Ashmore, Catherine Bailey, Sarah Banks, Janette Churchill, Harriet Cochrane, Barbara Cook, Jennifer Dale, Clare Daly, Anne Dixon, Marjorie Dunlop, Carolyn Ellerton, Charlotte Emm, Anita Firman, Sarah Ford, Suzanne French, Moira Gribben, Joanna Grimsley, Anne Herlihy, Ide Hill, Melanie Judd, Shirley Lang, Karen Males, Jo McDonald, Joy McStravick, Nicola Millington, Chloe Newby, Camille Noble, Catharine Pereira, Rachel Pinto, Alex Robertson, Louise Robotham, Abigail Ross, Kathleen Singleton, Kath Skeath, Rachel Terry, Allyson Van Wyk, Karen White, Fiona White, Lucy Wildgoose, Jo Woodall, Alison MacDonald, Anita |
author_sort | Evans, Sharon |
collection | PubMed |
description | In phenylketonuria (PKU), variable dietary advice provided by health professionals and social media leads to uncertainty for patients/caregivers reliant on accurate, evidence based dietary information. Over four years, 112 consensus statements concerning the allocation of foods in a low phenylalanine diet for PKU were developed by the British Inherited Metabolic Disease Dietitians Group (BIMDG-DG) from 34 PKU treatment centres, utilising 10 rounds of Delphi consultation to gain a majority (≥75%) decision. A mean of 29 UK dietitians (range: 18–40) and 18 treatment centres (range: 13–23) contributed in each round. Statements encompassed all foods/food groups divided into four categories based on defined protein/phenylalanine content: (1) foods high in protein/phenylalanine (best avoided); (2) foods allowed without restriction including fruit/vegetables containing phenylalanine ≤75 mg/100 g and most foods containing protein ≤0.5 g/100 g; (3) foods that should be calculated/weighed as an exchange food if they contain protein exchange ingredients (categorized into foods with a protein content of: >0.1 g/100 g (milk/plant milks only), >0.5 g/100 g (bread/pasta/cereal/flours), >1 g/100 g (cook-in/table-top sauces/dressings), >1.5 g/100 g (soya sauces)); and (4) fruit/vegetables containing phenylalanine >75 mg/100 g allocated as part of the protein/phenylalanine exchange system. These statements have been endorsed and translated into practical dietary management advice by the medical advisory dietitians for the National Society for PKU (NSPKU). |
format | Online Article Text |
id | pubmed-7468820 |
institution | National Center for Biotechnology Information |
language | English |
publishDate | 2020 |
publisher | MDPI |
record_format | MEDLINE/PubMed |
spelling | pubmed-74688202020-09-04 Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements Evans, Sharon Adam, Sarah Adams, Sandra Allen, Heather Ashmore, Catherine Bailey, Sarah Banks, Janette Churchill, Harriet Cochrane, Barbara Cook, Jennifer Dale, Clare Daly, Anne Dixon, Marjorie Dunlop, Carolyn Ellerton, Charlotte Emm, Anita Firman, Sarah Ford, Suzanne French, Moira Gribben, Joanna Grimsley, Anne Herlihy, Ide Hill, Melanie Judd, Shirley Lang, Karen Males, Jo McDonald, Joy McStravick, Nicola Millington, Chloe Newby, Camille Noble, Catharine Pereira, Rachel Pinto, Alex Robertson, Louise Robotham, Abigail Ross, Kathleen Singleton, Kath Skeath, Rachel Terry, Allyson Van Wyk, Karen White, Fiona White, Lucy Wildgoose, Jo Woodall, Alison MacDonald, Anita Nutrients Article In phenylketonuria (PKU), variable dietary advice provided by health professionals and social media leads to uncertainty for patients/caregivers reliant on accurate, evidence based dietary information. Over four years, 112 consensus statements concerning the allocation of foods in a low phenylalanine diet for PKU were developed by the British Inherited Metabolic Disease Dietitians Group (BIMDG-DG) from 34 PKU treatment centres, utilising 10 rounds of Delphi consultation to gain a majority (≥75%) decision. A mean of 29 UK dietitians (range: 18–40) and 18 treatment centres (range: 13–23) contributed in each round. Statements encompassed all foods/food groups divided into four categories based on defined protein/phenylalanine content: (1) foods high in protein/phenylalanine (best avoided); (2) foods allowed without restriction including fruit/vegetables containing phenylalanine ≤75 mg/100 g and most foods containing protein ≤0.5 g/100 g; (3) foods that should be calculated/weighed as an exchange food if they contain protein exchange ingredients (categorized into foods with a protein content of: >0.1 g/100 g (milk/plant milks only), >0.5 g/100 g (bread/pasta/cereal/flours), >1 g/100 g (cook-in/table-top sauces/dressings), >1.5 g/100 g (soya sauces)); and (4) fruit/vegetables containing phenylalanine >75 mg/100 g allocated as part of the protein/phenylalanine exchange system. These statements have been endorsed and translated into practical dietary management advice by the medical advisory dietitians for the National Society for PKU (NSPKU). MDPI 2020-07-24 /pmc/articles/PMC7468820/ /pubmed/32722073 http://dx.doi.org/10.3390/nu12082205 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/). |
spellingShingle | Article Evans, Sharon Adam, Sarah Adams, Sandra Allen, Heather Ashmore, Catherine Bailey, Sarah Banks, Janette Churchill, Harriet Cochrane, Barbara Cook, Jennifer Dale, Clare Daly, Anne Dixon, Marjorie Dunlop, Carolyn Ellerton, Charlotte Emm, Anita Firman, Sarah Ford, Suzanne French, Moira Gribben, Joanna Grimsley, Anne Herlihy, Ide Hill, Melanie Judd, Shirley Lang, Karen Males, Jo McDonald, Joy McStravick, Nicola Millington, Chloe Newby, Camille Noble, Catharine Pereira, Rachel Pinto, Alex Robertson, Louise Robotham, Abigail Ross, Kathleen Singleton, Kath Skeath, Rachel Terry, Allyson Van Wyk, Karen White, Fiona White, Lucy Wildgoose, Jo Woodall, Alison MacDonald, Anita Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements |
title | Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements |
title_full | Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements |
title_fullStr | Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements |
title_full_unstemmed | Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements |
title_short | Uniformity of Food Protein Interpretation Amongst Dietitians for Patients with Phenylketonuria (PKU): 2020 UK National Consensus Statements |
title_sort | uniformity of food protein interpretation amongst dietitians for patients with phenylketonuria (pku): 2020 uk national consensus statements |
topic | Article |
url | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7468820/ https://www.ncbi.nlm.nih.gov/pubmed/32722073 http://dx.doi.org/10.3390/nu12082205 |
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