“It’s being part of the big picture, even though you’re a tiny jigsaw piece”—motivations and expectations of individuals participating in the Enroll-HD observational study

Predictive test guidelines for Huntington’s disease (HD) recommend individuals are offered opportunities to participate in research regardless of test outcome. Consistent with most HD centres of excellence, the Manchester Centre for Genomic Medicine (MCGM) invites eligible individuals to participate...

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Detalles Bibliográficos
Autores principales: Davies, E., Craufurd, D., MacLeod, R.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2020
Materias:
Original Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7475145/
https://www.ncbi.nlm.nih.gov/pubmed/32157658
http://dx.doi.org/10.1007/s12687-020-00459-3

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7475145/
https://www.ncbi.nlm.nih.gov/pubmed/32157658
http://dx.doi.org/10.1007/s12687-020-00459-3

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