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Evaluation of assessment of caregiver experience with neuromuscular disease: reliability and responsiveness of a new caregiver-reported outcome measure in patients with cerebral palsy

BACKGROUND: Cerebral palsy (CP) is the most common cause of chronic childhood disability. Caregivers often provide prolonged care over patients’ life span, thus measuring the impact of the disease and its treatments on caregivers has become a recent focus in research. The current study aims to prese...

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Detalles Bibliográficos
Autores principales: Xu, Nanfang, Matsumoto, Hiroko, Hyman, Joshua, Roye, Benjamin, Kim, Heakyung, Roye, David P.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: AME Publishing Company 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7475311/
https://www.ncbi.nlm.nih.gov/pubmed/32953548
http://dx.doi.org/10.21037/tp-19-176