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Evaluation of assessment of caregiver experience with neuromuscular disease: reliability and responsiveness of a new caregiver-reported outcome measure in patients with cerebral palsy
BACKGROUND: Cerebral palsy (CP) is the most common cause of chronic childhood disability. Caregivers often provide prolonged care over patients’ life span, thus measuring the impact of the disease and its treatments on caregivers has become a recent focus in research. The current study aims to prese...
Autores principales: | Xu, Nanfang, Matsumoto, Hiroko, Hyman, Joshua, Roye, Benjamin, Kim, Heakyung, Roye, David P. |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
AME Publishing Company
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7475311/ https://www.ncbi.nlm.nih.gov/pubmed/32953548 http://dx.doi.org/10.21037/tp-19-176 |
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