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Role of a regulatory and governance framework in human biological materials and data sharing in National Biobanks: Case studies from Biobank Integrating Platform, Taiwan and the National Biorepository, Uganda

Background: In the last decade, Low- and Middle-Income Countries (LMICs) have set up Biobanks to collect human biological materials and associated data for genomic research and public health purposes. Biobanking gives rise to ethical challenges, such as informed consent, benefit sharing, confidentia...

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Detalles Bibliográficos
Autores principales: Nansumba, Hellen, Ssewanyana, Isaac, Tai, Micheal, Wassenaar, Douglas
Formato: Online Artículo Texto
Lenguaje:English
Publicado: F1000 Research Limited 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7479498/
https://www.ncbi.nlm.nih.gov/pubmed/32954012
http://dx.doi.org/10.12688/wellcomeopenres.15442.2