Burden of Illness and Quality of Life in Tuberous Sclerosis Complex: Findings From the TOSCA Study

Research on tuberous sclerosis complex (TSC) to date has focused mainly on the physical manifestations of the disease. In contrast, the psychosocial impact of TSC has received far less attention. The aim of this study was therefore to examine the impact of TSC on health, quality of life (QoL), and p...

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Detalles Bibliográficos
Autores principales: Jansen, Anna C., Vanclooster, Stephanie, de Vries, Petrus J., Fladrowski, Carla, Beaure d'Augères, Guillaume, Carter, Tom, Belousova, Elena, Benedik, Mirjana P., Cottin, Vincent, Curatolo, Paolo, Dahlin, Maria, D'Amato, Lisa, Ferreira, José C., Feucht, Martha, Hertzberg, Christoph, Jozwiak, Sergiusz, Lawson, John A., Macaya, Alfons, Marques, Ruben, Nabbout, Rima, O'Callaghan, Finbar, Qin, Jiong, Sander, Valentin, Sauter, Matthias, Shah, Seema, Takahashi, Yukitoshi, Touraine, Renaud, Youroukos, Sotiris, Zonnenberg, Bernard, Kingswood, J. Chris
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Frontiers Media S.A. 2020
Materias:
Neurology
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7485558/
https://www.ncbi.nlm.nih.gov/pubmed/32982929
http://dx.doi.org/10.3389/fneur.2020.00904

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7485558/
https://www.ncbi.nlm.nih.gov/pubmed/32982929
http://dx.doi.org/10.3389/fneur.2020.00904

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