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Parental psychosocial aspects and stressors involved in the management of inborn errors of metabolism

Parents of children with inborn errors of metabolism (IEM) face numerous psychosocial challenges. An increased understanding and awareness of these stressors can ensure better overall outcomes for the entire family. We conducted semi-structured, in-person interviews with ten parents to identify psyc...

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Detalles Bibliográficos
Autores principales: Rajasekar, Prashanth, Gannavarapu, Srinitya, Napier, Melanie, Prasad, Asuri N., Vasudev, Akshya, Mantulak, Andrew, Potter, Beth K., Prasad, Chitra
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Elsevier 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7536737/
https://www.ncbi.nlm.nih.gov/pubmed/33042776
http://dx.doi.org/10.1016/j.ymgmr.2020.100654