Cargando…
Parental psychosocial aspects and stressors involved in the management of inborn errors of metabolism
Parents of children with inborn errors of metabolism (IEM) face numerous psychosocial challenges. An increased understanding and awareness of these stressors can ensure better overall outcomes for the entire family. We conducted semi-structured, in-person interviews with ten parents to identify psyc...
Autores principales: | Rajasekar, Prashanth, Gannavarapu, Srinitya, Napier, Melanie, Prasad, Asuri N., Vasudev, Akshya, Mantulak, Andrew, Potter, Beth K., Prasad, Chitra |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
Elsevier
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7536737/ https://www.ncbi.nlm.nih.gov/pubmed/33042776 http://dx.doi.org/10.1016/j.ymgmr.2020.100654 |
Ejemplares similares
-
Evaluating psychosocial stressors in families of children with inborn errors of metabolism
por: Grant, Nathan, et al.
Publicado: (2021) -
Inborn Errors of Metabolism and Epilepsy: Current Understanding, Diagnosis, and Treatment Approaches
por: Sharma, Suvasini, et al.
Publicado: (2017) -
Use of complementary and alternative medicine in patients with inborn errors of metabolism: A single‐center study
por: Tao, Jessica, et al.
Publicado: (2019) -
Developments in evidence creation for treatments of inborn errors of metabolism
por: Stockler‐Ipsiroglu, Sylvia, et al.
Publicado: (2020) -
Child and family experiences with inborn errors of metabolism: a qualitative interview study with representatives of patient groups
por: Khangura, Sara D., et al.
Publicado: (2015)