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Giving Children With Osteogenesis Imperfecta a Voice: Participatory Approach for the Development of the Interactive Assessment and Communication Tool Sisom OI

BACKGROUND: Children with osteogenesis imperfecta (OI) experience acute and chronic symptoms that expose them to physical, mental, and social challenges. Empowering these children by involving them in their care can help them to cope with OI. Sisom is an interactive assessment and communication tool...

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Detalles Bibliográficos
Autores principales: Siedlikowski, Maia, Rauch, Frank, Tsimicalis, Argerie
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7539168/
https://www.ncbi.nlm.nih.gov/pubmed/32960176
http://dx.doi.org/10.2196/17947