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Giving Children With Osteogenesis Imperfecta a Voice: Participatory Approach for the Development of the Interactive Assessment and Communication Tool Sisom OI
BACKGROUND: Children with osteogenesis imperfecta (OI) experience acute and chronic symptoms that expose them to physical, mental, and social challenges. Empowering these children by involving them in their care can help them to cope with OI. Sisom is an interactive assessment and communication tool...
Autores principales: | Siedlikowski, Maia, Rauch, Frank, Tsimicalis, Argerie |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
JMIR Publications
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7539168/ https://www.ncbi.nlm.nih.gov/pubmed/32960176 http://dx.doi.org/10.2196/17947 |
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