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Health service experiences among adults with hereditary spastic paraparesis or neurofibromatosis type 1
BACKGROUND: Persons with rare disorders may experience poorer health services due to limited knowledge about rare disorders among health professionals. Knowledge about how persons with rare disorders perceive health services can help inform service providers to enhance their practices. METHODS: We c...
Autores principales: | , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7549577/ https://www.ncbi.nlm.nih.gov/pubmed/32924306 http://dx.doi.org/10.1002/mgg3.1399 |