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Health service experiences among adults with hereditary spastic paraparesis or neurofibromatosis type 1

BACKGROUND: Persons with rare disorders may experience poorer health services due to limited knowledge about rare disorders among health professionals. Knowledge about how persons with rare disorders perceive health services can help inform service providers to enhance their practices. METHODS: We c...

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Detalles Bibliográficos
Autores principales:	Fjermestad, Krister W., Kanavin, Øivind, Nyhus, Livø, Hoxmark, Lise B.
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	John Wiley and Sons Inc. 2020
Materias:	Letter to the Editor
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7549577/ https://www.ncbi.nlm.nih.gov/pubmed/32924306 http://dx.doi.org/10.1002/mgg3.1399

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