The urgent need to empower rare disease organizations in China: an interview-based study

BACKGROUND: Each rare disease only affects a small number of population. However, a total of 7000 rare diseases may affect 10% of the population. Due to the severity and lack of rare disease awareness, rare disease represents a huge challenge for the healthcare system. In Western countries, patient...

Descripción completa

Detalles Bibliográficos
Autores principales: Li, Xuefeng, Lu, Zijuan, Zhang, Jianyong, Zhang, Xiangyu, Zhang, Shu, Zhou, Jincheng, Li, Bingzhe, Ou, Li
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7552513/
https://www.ncbi.nlm.nih.gov/pubmed/33046132
http://dx.doi.org/10.1186/s13023-020-01568-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7552513/
https://www.ncbi.nlm.nih.gov/pubmed/33046132
http://dx.doi.org/10.1186/s13023-020-01568-5

Ejemplares similares