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The urgent need to empower rare disease organizations in China: an interview-based study
BACKGROUND: Each rare disease only affects a small number of population. However, a total of 7000 rare diseases may affect 10% of the population. Due to the severity and lack of rare disease awareness, rare disease represents a huge challenge for the healthcare system. In Western countries, patient...
| Autores principales: | , , , , , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2020
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| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7552513/ https://www.ncbi.nlm.nih.gov/pubmed/33046132 http://dx.doi.org/10.1186/s13023-020-01568-5 |