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Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities

In a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed,...

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Autores principales: Samuels, Alecia, Dada, Shakila, Van Niekerk, Karin, Arvidsson, Patrik, Huus, Karina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7558196/
https://www.ncbi.nlm.nih.gov/pubmed/32942532
http://dx.doi.org/10.3390/ijerph17186702
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author Samuels, Alecia
Dada, Shakila
Van Niekerk, Karin
Arvidsson, Patrik
Huus, Karina
author_facet Samuels, Alecia
Dada, Shakila
Van Niekerk, Karin
Arvidsson, Patrik
Huus, Karina
author_sort Samuels, Alecia
collection PubMed
description In a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed, contextually valid measure of participation, Picture my Participation (PmP), 106 children with (73) and without ID (33), rated their frequency of participation in activities of daily living. Previous international research has established that children with ID tend to participate less frequently than children without ID in everyday activities outside of the school setting. However, much of this research is based on proxy ratings from caregivers rather than children with ID themselves. There is a growing body of evidence that suggests children with disabilities have uniquely different views of their own participation than their caregivers. The existing research evidence is also delimited to studies conducted predominantly in high income contexts (HICSs). Since it is universally acknowledged that participation patterns are affected by the environment, it is important to evaluate the generalizability of the current evidence to LMICs. The current study found that there were many similar patterns of participation between the two groups although significant differences were noted in social, community, leisure and self-care activities. We compare these results to findings from studies conducted in HICs and find that there are similarities but also differences across contexts. This study highlights the importance of gaining a child’s perspective of participation and understanding how intellectual disability can affect participation relative to peers without ID in LMICS.
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spelling pubmed-75581962020-10-29 Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities Samuels, Alecia Dada, Shakila Van Niekerk, Karin Arvidsson, Patrik Huus, Karina Int J Environ Res Public Health Article In a low-and middle-income country (LMIC) such as South Africa, not much is known about how children with intellectual disabilities (ID) participate in everyday activities, as no studies to date have compared their participation to peers without ID from the same background. Using a newly developed, contextually valid measure of participation, Picture my Participation (PmP), 106 children with (73) and without ID (33), rated their frequency of participation in activities of daily living. Previous international research has established that children with ID tend to participate less frequently than children without ID in everyday activities outside of the school setting. However, much of this research is based on proxy ratings from caregivers rather than children with ID themselves. There is a growing body of evidence that suggests children with disabilities have uniquely different views of their own participation than their caregivers. The existing research evidence is also delimited to studies conducted predominantly in high income contexts (HICSs). Since it is universally acknowledged that participation patterns are affected by the environment, it is important to evaluate the generalizability of the current evidence to LMICs. The current study found that there were many similar patterns of participation between the two groups although significant differences were noted in social, community, leisure and self-care activities. We compare these results to findings from studies conducted in HICs and find that there are similarities but also differences across contexts. This study highlights the importance of gaining a child’s perspective of participation and understanding how intellectual disability can affect participation relative to peers without ID in LMICS. MDPI 2020-09-15 2020-09 /pmc/articles/PMC7558196/ /pubmed/32942532 http://dx.doi.org/10.3390/ijerph17186702 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Samuels, Alecia
Dada, Shakila
Van Niekerk, Karin
Arvidsson, Patrik
Huus, Karina
Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_full Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_fullStr Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_full_unstemmed Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_short Children in South Africa with and without Intellectual Disabilities’ Rating of Their Frequency of Participation in Everyday Activities
title_sort children in south africa with and without intellectual disabilities’ rating of their frequency of participation in everyday activities
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7558196/
https://www.ncbi.nlm.nih.gov/pubmed/32942532
http://dx.doi.org/10.3390/ijerph17186702
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