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Communicating cystic fibrosis newborn screening results to parents

The way results of cystic fibrosis (CF) newborn screening are communicated to parents is critical yet is done differently across the globe. We surveyed parents of 101 children in our tertiary London paediatric centre with a 48% response rate. Parental responses were as follows: 40/42 (95%) said the...

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Detalles Bibliográficos
Autores principales: Seddon, L., Dick, K., Carr, S. B., Balfour-Lynn, I. M.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Springer Berlin Heidelberg 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7567649/
https://www.ncbi.nlm.nih.gov/pubmed/33067713
http://dx.doi.org/10.1007/s00431-020-03829-8