Family Attitudes regarding Newborn Screening for Krabbe Disease: Results from a Survey of Leukodystrophy Registries

Newborn screening (NBS) for Krabbe disease (KD) is currently underway in eight states in the USA, and there is continued discussion of whether to implement KD NBS in additional states. Workgroup members sought to survey a large number of families affected by KD. Families in KD and leukodystrophy fam...

Descripción completa

Detalles Bibliográficos
Autores principales: Blackwell, Karlita, Gelb, Michael H., Grantham, Anna, Spencer, Natasha, Webb, Christin, West, Tara
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7570074/
https://www.ncbi.nlm.nih.gov/pubmed/33239592
http://dx.doi.org/10.3390/ijns6030066

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7570074/
https://www.ncbi.nlm.nih.gov/pubmed/33239592
http://dx.doi.org/10.3390/ijns6030066

Ejemplares similares