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Management of information within Portuguese families with Huntington disease: a transgenerational process for putting the puzzle together
Huntington disease (HD) is a rare progressive neurological disease, with no cure, inherited in an autosomal dominant fashion, significantly impacting family relations, health and well-being. So far, no studies have reported how Portuguese families deal with information about HD, from a transgenerati...
| Autores principales: | , , , |
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| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
Springer International Publishing
2020
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| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7608350/ https://www.ncbi.nlm.nih.gov/pubmed/32341469 http://dx.doi.org/10.1038/s41431-020-0630-z |