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How to inform at‐risk relatives? Attitudes of 1379 Dutch patients, relatives, and members of the general population

The uptake of predictive DNA testing in families with a hereditary disease is <50%. Current practice often relies on the proband to inform relatives about the possibility of predictive DNA testing, but not all relatives are informed adequately. To enable informed decision‐making concerning predic...

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Detalles Bibliográficos
Autores principales: Marleen van den Heuvel, Lieke, Stemkens, Daphne, van Zelst‐Stams, Wendy A. G., Willeboordse, Floor, Christiaans, Imke
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley and Sons Inc. 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7649718/
https://www.ncbi.nlm.nih.gov/pubmed/31889383
http://dx.doi.org/10.1002/jgc4.1206