Cargando…
How to inform at‐risk relatives? Attitudes of 1379 Dutch patients, relatives, and members of the general population
The uptake of predictive DNA testing in families with a hereditary disease is <50%. Current practice often relies on the proband to inform relatives about the possibility of predictive DNA testing, but not all relatives are informed adequately. To enable informed decision‐making concerning predic...
Autores principales: | Marleen van den Heuvel, Lieke, Stemkens, Daphne, van Zelst‐Stams, Wendy A. G., Willeboordse, Floor, Christiaans, Imke |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley and Sons Inc.
2019
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7649718/ https://www.ncbi.nlm.nih.gov/pubmed/31889383 http://dx.doi.org/10.1002/jgc4.1206 |
Ejemplares similares
-
A genetic researcher’s devil’s dilemma: Warn relatives about their genetic risk or respect confidentiality agreements with research participants?
por: van den Heuvel, Lieke M., et al.
Publicado: (2021) -
A tailored approach towards informing relatives at risk of inherited cardiac conditions: study protocol for a randomised controlled trial
por: van den Heuvel, Lieke M, et al.
Publicado: (2019) -
1379. Caregiver Burden related to Rotavirus Gastroenteritis: a systematic literature review
por: Carias, Cristina, et al.
Publicado: (2020) -
Genetic Evaluation in a Cohort of 126 Dutch Pulmonary Arterial Hypertension Patients
por: van den Heuvel, Lieke M., et al.
Publicado: (2020) -
The psychometric properties of the 'Hospital Survey on Patient Safety Culture' in Dutch hospitals
por: Smits, Marleen, et al.
Publicado: (2008)