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Implementation of a learning healthcare system for sickle cell disease

OBJECTIVE: Using sickle cell disease (SCD) as a model, the objective of this study was to create a comprehensive learning healthcare system to support disease management and research. A multidisciplinary team developed a SCD clinical data dictionary to standardize bedside data entry and inform a sca...

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Detalles Bibliográficos
Autores principales: Miller, Robin, Coyne, Erin, Crowgey, Erin L, Eckrich, Dan, Myers, Jeffrey C, Villanueva, Raymond, Wadman, Jean, Jacobs-Allen, Sidnie, Gresh, Renee, Volchenboum, Samuel L, Kolb, E Anders
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Oxford University Press 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7660956/
https://www.ncbi.nlm.nih.gov/pubmed/33215070
http://dx.doi.org/10.1093/jamiaopen/ooaa024