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“Who is watching the watchdog?”: ethical perspectives of sharing health-related data for precision medicine in Singapore

BACKGROUND: We aimed to examine the ethical concerns Singaporeans have about sharing health-data for precision medicine (PM) and identify suggestions for governance strategies. Just as Asian genomes are under-represented in PM, the views of Asian populations about the risks and benefits of data shar...

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Detalles Bibliográficos
Autores principales: Lysaght, Tamra, Ballantyne, Angela, Xafis, Vicki, Ong, Serene, Schaefer, Gerald Owen, Ling, Jeffrey Min Than, Newson, Ainsley J., Khor, Ing Wei, Tai, E. Shyong
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7678103/
https://www.ncbi.nlm.nih.gov/pubmed/33213433
http://dx.doi.org/10.1186/s12910-020-00561-8