Cargando…
“Who is watching the watchdog?”: ethical perspectives of sharing health-related data for precision medicine in Singapore
BACKGROUND: We aimed to examine the ethical concerns Singaporeans have about sharing health-data for precision medicine (PM) and identify suggestions for governance strategies. Just as Asian genomes are under-represented in PM, the views of Asian populations about the risks and benefits of data shar...
Autores principales: | Lysaght, Tamra, Ballantyne, Angela, Xafis, Vicki, Ong, Serene, Schaefer, Gerald Owen, Ling, Jeffrey Min Than, Newson, Ainsley J., Khor, Ing Wei, Tai, E. Shyong |
---|---|
Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2020
|
Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7678103/ https://www.ncbi.nlm.nih.gov/pubmed/33213433 http://dx.doi.org/10.1186/s12910-020-00561-8 |
Ejemplares similares
-
Perceptions of ‘Precision’ and ‘Personalised’ Medicine in Singapore and Associated Ethical Issues
por: Ong, Serene, et al.
Publicado: (2021) -
Trust and Trade-Offs in Sharing Data for Precision Medicine: A National Survey of Singapore
por: Lysaght, Tamra, et al.
Publicado: (2021) -
An Ethics Framework for Big Data in Health and Research
por: Xafis, Vicki, et al.
Publicado: (2019) -
AI-Assisted Decision-making in Healthcare: The Application of an Ethics Framework for Big Data in Health and Research
por: Lysaght, Tamra, et al.
Publicado: (2019) -
Professional Oversight of Emergency-Use Interventions and Monitoring Systems: Ethical Guidance From the Singapore Experience of COVID-19
por: Lysaght, Tamra, et al.
Publicado: (2022)