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Eating Experiences of People with Disabilities: A Qualitative Study in Spain

Background: Disability causes changes in the eating process, which is central to the definition of each individual’s social and psychological spaces. Methods: This is a qualitative study based on grounded theory. Interviews were carried out in clinical hospital settings and headquarters of several d...

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Autores principales: Cipriano-Crespo, Carmen, Rodríguez-Hernández, Marta, Cantero-Garlito, Pablo, Mariano-Juárez, Lorenzo
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7712265/
https://www.ncbi.nlm.nih.gov/pubmed/33255395
http://dx.doi.org/10.3390/healthcare8040512
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author Cipriano-Crespo, Carmen
Rodríguez-Hernández, Marta
Cantero-Garlito, Pablo
Mariano-Juárez, Lorenzo
author_facet Cipriano-Crespo, Carmen
Rodríguez-Hernández, Marta
Cantero-Garlito, Pablo
Mariano-Juárez, Lorenzo
author_sort Cipriano-Crespo, Carmen
collection PubMed
description Background: Disability causes changes in the eating process, which is central to the definition of each individual’s social and psychological spaces. Methods: This is a qualitative study based on grounded theory. Interviews were carried out in clinical hospital settings and headquarters of several disability organisations. The study included 27 individuals, aged between 18–75 years. All participants had a disability that caused a functional deficiency in the occupational aspects of the eating process. Results: The respondents’ narratives were analysed through observations made in different contexts, allowing us to describe and understand the significance attributed by the participants to their reality and experiences. Three key themes emerged from the analysis: (1) waning bodies (assumption of a diminished corporality); (2) redefinition of food-related social spaces; and (3) perceived burdensomeness, shame, and loneliness. Conclusions: Assisted feeding tends to prioritise the nutritional component of food ingestion. However, cultural, social, and contextual factors have a critical impact on an individual’s well-being and quality of life. This study stresses the importance of re-addressing intervention models affecting differently-abled people and incorporating approaches that take into account the contextual aspects of occupational therapy.
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spelling pubmed-77122652020-12-04 Eating Experiences of People with Disabilities: A Qualitative Study in Spain Cipriano-Crespo, Carmen Rodríguez-Hernández, Marta Cantero-Garlito, Pablo Mariano-Juárez, Lorenzo Healthcare (Basel) Article Background: Disability causes changes in the eating process, which is central to the definition of each individual’s social and psychological spaces. Methods: This is a qualitative study based on grounded theory. Interviews were carried out in clinical hospital settings and headquarters of several disability organisations. The study included 27 individuals, aged between 18–75 years. All participants had a disability that caused a functional deficiency in the occupational aspects of the eating process. Results: The respondents’ narratives were analysed through observations made in different contexts, allowing us to describe and understand the significance attributed by the participants to their reality and experiences. Three key themes emerged from the analysis: (1) waning bodies (assumption of a diminished corporality); (2) redefinition of food-related social spaces; and (3) perceived burdensomeness, shame, and loneliness. Conclusions: Assisted feeding tends to prioritise the nutritional component of food ingestion. However, cultural, social, and contextual factors have a critical impact on an individual’s well-being and quality of life. This study stresses the importance of re-addressing intervention models affecting differently-abled people and incorporating approaches that take into account the contextual aspects of occupational therapy. MDPI 2020-11-24 /pmc/articles/PMC7712265/ /pubmed/33255395 http://dx.doi.org/10.3390/healthcare8040512 Text en © 2020 by the authors. Licensee MDPI, Basel, Switzerland. This article is an open access article distributed under the terms and conditions of the Creative Commons Attribution (CC BY) license (http://creativecommons.org/licenses/by/4.0/).
spellingShingle Article
Cipriano-Crespo, Carmen
Rodríguez-Hernández, Marta
Cantero-Garlito, Pablo
Mariano-Juárez, Lorenzo
Eating Experiences of People with Disabilities: A Qualitative Study in Spain
title Eating Experiences of People with Disabilities: A Qualitative Study in Spain
title_full Eating Experiences of People with Disabilities: A Qualitative Study in Spain
title_fullStr Eating Experiences of People with Disabilities: A Qualitative Study in Spain
title_full_unstemmed Eating Experiences of People with Disabilities: A Qualitative Study in Spain
title_short Eating Experiences of People with Disabilities: A Qualitative Study in Spain
title_sort eating experiences of people with disabilities: a qualitative study in spain
topic Article
url https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7712265/
https://www.ncbi.nlm.nih.gov/pubmed/33255395
http://dx.doi.org/10.3390/healthcare8040512
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