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The Burden of Spinal Muscular Atrophy on Informal Caregivers

Spinal muscular atrophy (SMA) is one of the most common severe hereditary diseases of infancy and early childhood. The progression of this illness causes a high degree of disability; hence, a significant burden is experienced by individuals with this disease and their families. We analyzed the time...

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Detalles Bibliográficos
Autores principales: Aranda-Reneo, Isaac, Peña-Longobardo, Luz María, Oliva-Moreno, Juan, Litzkendorf, Svenja, Durand-Zaleski, Isabelle, Tizzano, Eduardo F., López-Bastida, Julio
Formato: Online Artículo Texto
Lenguaje:English
Publicado: MDPI 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7730048/
https://www.ncbi.nlm.nih.gov/pubmed/33276656
http://dx.doi.org/10.3390/ijerph17238989