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The Burden of Spinal Muscular Atrophy on Informal Caregivers
Spinal muscular atrophy (SMA) is one of the most common severe hereditary diseases of infancy and early childhood. The progression of this illness causes a high degree of disability; hence, a significant burden is experienced by individuals with this disease and their families. We analyzed the time...
Autores principales: | Aranda-Reneo, Isaac, Peña-Longobardo, Luz María, Oliva-Moreno, Juan, Litzkendorf, Svenja, Durand-Zaleski, Isabelle, Tizzano, Eduardo F., López-Bastida, Julio |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
MDPI
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7730048/ https://www.ncbi.nlm.nih.gov/pubmed/33276656 http://dx.doi.org/10.3390/ijerph17238989 |
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