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Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

The use of broad consent for genomics research raises important ethical questions for the conduct of genomics research, including relating to its acceptability to research participants and comprehension of difficult scientific concepts. To explore these and other challenges, we conducted a study usi...

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Detalles Bibliográficos
Autores principales: Mweemba, Oliver, Musuku, John, Mayosi, Bongani M., Parker, Michael, Rutakumwa, Rwamahe, Seeley, Janet, Tindana, Paulina, De Vries, Jantina
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Routledge 2019
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7734073/
https://www.ncbi.nlm.nih.gov/pubmed/33343192
http://dx.doi.org/10.1080/11287462.2019.1592868