Assessing physical symptoms, daily functioning, and well‐being in children with achondroplasia

This study's purpose was to provide qualitative evidence to support the development of two observer‐reported outcome measures assessing the physical symptoms/complications of achondroplasia in children and impacts on children's quality of life. Individual/focus group concept elicitation in...

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Detalles Bibliográficos
Autores principales: Pfeiffer, Kathryn M., Brod, Meryl, Smith, Alden, Gianettoni, Jill, Viuff, Dorthe, Ota, Sho, Charlton, R. Will
Formato: Online Artículo Texto
Lenguaje:English
Publicado: John Wiley & Sons, Inc. 2020
Materias:
Original Articles
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7756853/
https://www.ncbi.nlm.nih.gov/pubmed/33084192
http://dx.doi.org/10.1002/ajmg.a.61903

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7756853/
https://www.ncbi.nlm.nih.gov/pubmed/33084192
http://dx.doi.org/10.1002/ajmg.a.61903

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