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Assessing physical symptoms, daily functioning, and well‐being in children with achondroplasia
This study's purpose was to provide qualitative evidence to support the development of two observer‐reported outcome measures assessing the physical symptoms/complications of achondroplasia in children and impacts on children's quality of life. Individual/focus group concept elicitation in...
Autores principales: | Pfeiffer, Kathryn M., Brod, Meryl, Smith, Alden, Gianettoni, Jill, Viuff, Dorthe, Ota, Sho, Charlton, R. Will |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
John Wiley & Sons, Inc.
2020
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7756853/ https://www.ncbi.nlm.nih.gov/pubmed/33084192 http://dx.doi.org/10.1002/ajmg.a.61903 |
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