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Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

BACKGROUND: There is substantial prior research on the perspectives of patients on the use of health information for research. Numerous communication barriers challenge transparency between researchers and data participants in secondary database research (eg, waiver of informed consent and knowledge...

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Detalles Bibliográficos
Autores principales: Schmit, Cason, Ajayi, Kobi V, Ferdinand, Alva O, Giannouchos, Theodoros, Ilangovan, Gurudev, Nowell, W Benjamin, Kum, Hye-Chung
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7772068/
https://www.ncbi.nlm.nih.gov/pubmed/33320097
http://dx.doi.org/10.2196/20783