Cargando…

Communicating With Patients About Software for Enhancing Privacy in Secondary Database Research Involving Record Linkage: Delphi Study

BACKGROUND: There is substantial prior research on the perspectives of patients on the use of health information for research. Numerous communication barriers challenge transparency between researchers and data participants in secondary database research (eg, waiver of informed consent and knowledge...

Descripción completa

Detalles Bibliográficos
Autores principales:	Schmit, Cason, Ajayi, Kobi V, Ferdinand, Alva O, Giannouchos, Theodoros, Ilangovan, Gurudev, Nowell, W Benjamin, Kum, Hye-Chung
Formato:	Online Artículo Texto
Lenguaje:	English
Publicado:	JMIR Publications 2020
Materias:	Original Paper
Acceso en línea:	https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7772068/ https://www.ncbi.nlm.nih.gov/pubmed/33320097 http://dx.doi.org/10.2196/20783

Ejemplares similares

US Privacy Laws Go Against Public Preferences and Impede Public Health and Research: Survey Study
por: Schmit, Cason, et al.
Publicado: (2021)

Optimization of the Mainzelliste software for fast privacy-preserving record linkage
por: Rohde, Florens, et al.
Publicado: (2021)

K-Anonymity Based Privacy Risk Budgeting System for Interactive Record Linkage
por: Kum, Hye-Chung, et al.
Publicado: (2017)

Privacy-preserving record linkage in large databases using secure multiparty computation
por: Laud, Peeter, et al.
Publicado: (2018)

Secure Privacy Preserving Record Linkage of Large Databases by Modified Bloom Filter Encodings
por: Schnell, Rainer, et al.
Publicado: (2017)

Semantic-based Privacy-preserving Record Linkage.
por: Lu, Yang
Publicado: (2022)

Privacy-preserving record linkage using Bloom filters
por: Schnell, Rainer, et al.
Publicado: (2009)

Evaluation of advanced techniques for multi-party privacy-preserving record linkage on real-world health databases
por: Ranbaduge, Thilina, et al.
Publicado: (2017)

Implementing privacy-preserving record linkage: welcome to the real world
por: Boyd, James, et al.
Publicado: (2017)

A Privacy Attack on Multiple Dynamic Match-key based Privacy-Preserving Record Linkage
por: Vidanage, A, et al.
Publicado: (2020)

A blinded evaluation of privacy preserving record linkage with Bloom filters
por: Randall, Sean, et al.
Publicado: (2022)

On the effectiveness of graph matching attacks against privacy-preserving record linkage
por: Heng, Youzhe, et al.
Publicado: (2022)

Designing an Algorithm to Preserve Privacy for Medical Record Linkage With Error-Prone Data
por: Pal, Doyel, et al.
Publicado: (2014)

Secure and Accurate Two-Step Hash Encoding for Privacy-Preserving Record Linkage
por: Ranbaduge, Thilina, et al.
Publicado: (2020)

Privacy-Preserving Record Linkage: An international collaboration between Canada, Australia and Wales
por: Pow, Conrad, et al.
Publicado: (2017)

A fast privacy-preserving patient record linkage of time series data
por: Soliman, Ahmed, et al.
Publicado: (2023)

An Improved Chinese String Comparator for Bloom Filter Based Privacy-Preserving Record Linkage
por: Sun, Siqi, et al.
Publicado: (2021)

Privacy-Preserving Record Linkage of Deidentified Records Within a Public Health Surveillance System: Evaluation Study
por: Nguyen, Long, et al.
Publicado: (2020)

ApplyiSplink: Free software for probabilistic record linkage at scale.
por: Linacre, Robin, et al.
Publicado: (2022)

Ensuring Privacy When Integrating Patient-Based Datasets: New Methods and Developments in Record Linkage
por: Brown, Adrian P., et al.
Publicado: (2017)

Establishing a framework for privacy-preserving record linkage among electronic health record and administrative claims databases within PCORnet(®), the National Patient-Centered Clinical Research Network
por: Kiernan, Daniel, et al.
Publicado: (2022)

Incremental Interactive Record Linkage using Human Intelligence Tasks (HITs)
por: Kum, Hye-Chung
Publicado: (2017)

A Study of Publicly Available Resources Addressing Legal Data-Sharing Barriers: Systematic Assessment
por: Karim, Mohammad A, et al.
Publicado: (2022)

Implementing a hash-based privacy-preserving record linkage tool in the OneFlorida clinical research network
por: Bian, Jiang, et al.
Publicado: (2019)

De-identified Bayesian personal identity matching for privacy-preserving record linkage despite errors: development and validation
por: Cardinal, Rudolf N., et al.
Publicado: (2023)

Comparing record linkage software programs and algorithms using real-world data
por: Karr, Alan F., et al.
Publicado: (2019)

Conventions for DELPHI Software
por: DELPHI Collaboration
Publicado: (1986)

Association between patient-provider communication and withholding information due to privacy concerns among women in the United States: an analysis of the 2011 to 2018 Health Information National Trends Survey
por: Ajayi, Kobi V., et al.
Publicado: (2023)

Estimating parameters for probabilistic linkage of privacy-preserved datasets
por: Brown, Adrian P., et al.
Publicado: (2017)

Privacy preserving linkage using multiple match-keys
por: Randall, SM, et al.
Publicado: (2019)

Economic Evaluation of Blood Pressure Monitoring Techniques in Patients With Hypertension: A Systematic Review
por: Hayek, Michelle A., et al.
Publicado: (2023)

Evaluating privacy-preserving record linkage using cryptographic long-term keys and multibit trees on large medical datasets
por: Brown, Adrian P., et al.
Publicado: (2017)

Mainzelliste SecureEpiLinker (MainSEL): privacy-preserving record linkage using secure multi-party computation
por: Stammler, Sebastian, et al.
Publicado: (2020)

Validating a novel deterministic privacy-preserving record linkage between administrative & clinical data: applications in stroke research
por: Southwell, Alisia, et al.
Publicado: (2022)

Perceptions of ICT Practitioners Regarding Software Privacy
por: Dias Canedo, Edna, et al.
Publicado: (2020)

Assessing the impact of privacy-preserving record linkage on record overlap and patient demographic and clinical characteristics in PCORnet(®), the National Patient-Centered Clinical Research Network
por: Marsolo, Keith, et al.
Publicado: (2022)

DELPHI: final report of the DELPHI software planning group
por: CERN. Geneva. LEP Experiments Committee
Publicado: (1984)

Multiple operating models for data linkage: A privacy positive
por: Irvine, Katrina, et al.
Publicado: (2017)

Privacy, Governance and Public Acceptability in Population Data Linkage for Research
por: O'Keefe, Christine M
Publicado: (2017)

Templates for the DELPHI Software Documentation
por: Pape, L
Publicado: (1987)

Cannot write session to /tmp/vufind_sessions/sess_l61hdbhuam1cl1glr17c3ii2ul