Recruitment strategies and geographic representativeness for patient survey studies in rare diseases: Experience from the living with myeloproliferative neoplasms patient survey

BACKGROUND: Recruitment of individuals with rare diseases for studies of real-world patient-reported outcomes is limited by small base populations. Myeloproliferative neoplasms (MPNs) are a group of rare, chronic, hematologic malignancies. In this study, recruitment strategies and geographic represe...

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Detalles Bibliográficos
Autores principales: Yu, Jingbo, Paranagama, Dilan, Parasuraman, Shreekant
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Public Library of Science 2020
Materias:
Research Article
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7774910/
https://www.ncbi.nlm.nih.gov/pubmed/33382745
http://dx.doi.org/10.1371/journal.pone.0243562

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7774910/
https://www.ncbi.nlm.nih.gov/pubmed/33382745
http://dx.doi.org/10.1371/journal.pone.0243562

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