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Patient’s thoughts and expectations about centres of expertise for PKU
BACKGROUND: In the Netherlands (NL) the government assigned 2 hospitals as centres of expertise (CE) for Phenylketonuria (PKU), while in the United Kingdom (UK) and Germany no centres are assigned specifically as PKU CE’s. METHODS: To identify expectations of patients/caregivers with PKU of CEs, a w...
Autores principales: | , , , , , , , |
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Formato: | Online Artículo Texto |
Lenguaje: | English |
Publicado: |
BioMed Central
2021
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Materias: | |
Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7789756/ https://www.ncbi.nlm.nih.gov/pubmed/33407655 http://dx.doi.org/10.1186/s13023-020-01647-7 |