Stakeholder perspectives on clinical research related to therapies for rare diseases: therapeutic misconception and the value of research

BACKGROUND: For many rare diseases, few treatments are supported by strong evidence. Patients, family members, health care providers, and policy-makers thus have to consider whether to accept, recommend, or fund treatments with uncertain clinical effectiveness. They must also consider whether and ho...

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Detalles Bibliográficos
Autores principales: Tingley, Kylie, Coyle, Doug, Graham, Ian D., Chakraborty, Pranesh, Wilson, Kumanan, Potter, Beth K.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7805116/
https://www.ncbi.nlm.nih.gov/pubmed/33436030
http://dx.doi.org/10.1186/s13023-020-01624-0

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7805116/
https://www.ncbi.nlm.nih.gov/pubmed/33436030
http://dx.doi.org/10.1186/s13023-020-01624-0

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