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Huntington’s Disease Community Perspectives on Desired Characteristics of Disease Modifying Therapies

BACKGROUND: Promising disease modifying therapies for Huntington’s disease are now entering pivotal trials, raising questions of what patients and families consider successful outcomes. Consistent with an ongoing movement to incorporate patient preferences into the development of new therapies, we c...

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Detalles Bibliográficos
Autores principales: Gornick, Michele C., Ryan, Kerry A., Dayalu, Praveen, Carlozzi, Noelle E., Albin, Roger L., Zahuranec, Darin B.
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Ubiquity Press 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7845464/
https://www.ncbi.nlm.nih.gov/pubmed/33569244
http://dx.doi.org/10.5334/tohm.584