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Using pre-existing social networks to determine the burden of disease and real-life needs in rare diseases: the example of Thygeson's superficial punctate keratitis

BACKGROUND: Thygeson’s superficial punctate keratitis (TSPK) is a rare and still poorly understood disease of the ocular surface, responsible for recurrent episodes of photophobia and eye pain. While TSPK is considered as a benign condition, a subset of patients has frequent recurrences or even chro...

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Detalles Bibliográficos
Autores principales: Saad, Rana, Saad, Sami, Haigh, Oscar, Molinari, Domitille, Labetoulle, Marc, Rousseau, Antoine
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7847580/
https://www.ncbi.nlm.nih.gov/pubmed/33516254
http://dx.doi.org/10.1186/s13023-021-01707-6