Experience of health care at a reference centre as reported by patients and parents of children with rare conditions

BACKGROUND: Whilst diagnostic pathways for children with rare conditions have shown marked improvement, concerns remain about the care children with rare conditions receive at the level of the health care provider. There is, therefore, a need to improve our understanding of the health care received...

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Detalles Bibliográficos
Autores principales: Hytiris, Monica, Johnston, Daisy, Mullen, Shannon, Smyth, Arlene, Dougan, Elizabeth, Rodie, Martina, Ahmed, S. Faisal
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Research
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7863259/
https://www.ncbi.nlm.nih.gov/pubmed/33541389
http://dx.doi.org/10.1186/s13023-021-01708-5

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7863259/
https://www.ncbi.nlm.nih.gov/pubmed/33541389
http://dx.doi.org/10.1186/s13023-021-01708-5

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