Mapping, Infrastructure, and Data Analysis for the Brazilian Network of Rare Diseases: Protocol for the RARASnet Observational Cohort Study

BACKGROUND: A rare disease is a medical condition with low prevalence in the general population, but these can collectively affect up to 10% of the population. Thus, rare diseases have a significant impact on the health care system, and health professionals must be familiar with their diagnosis, man...

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Detalles Bibliográficos
Autores principales: Alves, Domingos, Yamada, Diego Bettiol, Bernardi, Filipe Andrade, Carvalho, Isabelle, Filho, Márcio Eloi Colombo, Neiva, Mariane Barros, Lima, Vinícius Costa, Félix, Têmis Maria
Formato: Online Artículo Texto
Lenguaje:English
Publicado: JMIR Publications 2021
Materias:
Protocol
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7864771/
https://www.ncbi.nlm.nih.gov/pubmed/33480849
http://dx.doi.org/10.2196/24826

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7864771/
https://www.ncbi.nlm.nih.gov/pubmed/33480849
http://dx.doi.org/10.2196/24826

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