Role of patients associations in connective tissue calcifiying diseases: a position statement from EuroSoftCalc.Net group

Patients have been showing a growing interest in taking active participation in decision making, and having the opportunity to drive clinical investigation. This is more common for patients who have a rare disease than for those with more prevalent diseases. The EuroSoftCalc.Net COST Action, a group...

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Detalles Bibliográficos
Autores principales: Valdivielso, Pedro, Jacinto, Marta, Devernois, Guillemette, Laplana, Jorge, García-Fernández, Maria, Martin, Ludovic
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Position Statement
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7869194/
https://www.ncbi.nlm.nih.gov/pubmed/33557904
http://dx.doi.org/10.1186/s13023-021-01703-w

Internet

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7869194/
https://www.ncbi.nlm.nih.gov/pubmed/33557904
http://dx.doi.org/10.1186/s13023-021-01703-w

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