Cargando…
Role of patients associations in connective tissue calcifiying diseases: a position statement from EuroSoftCalc.Net group
Patients have been showing a growing interest in taking active participation in decision making, and having the opportunity to drive clinical investigation. This is more common for patients who have a rare disease than for those with more prevalent diseases. The EuroSoftCalc.Net COST Action, a group...
| Autores principales: | , , , , , |
|---|---|
| Formato: | Online Artículo Texto |
| Lenguaje: | English |
| Publicado: |
BioMed Central
2021
|
| Materias: | |
| Acceso en línea: | https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7869194/ https://www.ncbi.nlm.nih.gov/pubmed/33557904 http://dx.doi.org/10.1186/s13023-021-01703-w |