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How are patients with rare diseases and their carers in the UK impacted by the way care is coordinated? An exploratory qualitative interview study

BACKGROUND: Care coordination is considered important for patients with rare conditions, yet research addressing the impact of care coordination is limited. This study aimed to explore how care coordination (or lack of) impacts on patients and carers. Semi-structured interviews were conducted with 1...

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Detalles Bibliográficos
Autores principales: Simpson, Amy, Bloom, Lara, Fulop, Naomi J., Hudson, Emma, Leeson-Beevers, Kerry, Morris, Stephen, Ramsay, Angus I. G., Sutcliffe, Alastair G., Walton, Holly, Hunter, Amy
Formato: Online Artículo Texto
Lenguaje:English
Publicado: BioMed Central 2021
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7874609/
https://www.ncbi.nlm.nih.gov/pubmed/33568181
http://dx.doi.org/10.1186/s13023-020-01664-6