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Essential requirements for establishing and operating data trusts: practical guidance co-developed by representatives from fifteen canadian organizations and initiatives

INTRODUCTION: Increasingly, the label “data trust” is being applied to repeatable mechanisms or approaches to sharing data in a timely, fair, safe, and equitable way. However, there is an absence of practical guidance regarding how to establish and operate a data trust. AIM AND APPROACH: In December...

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Detalles Bibliográficos
Autores principales: Paprica, P. Alison, Sutherland, Eric, Smith, Andrea, Brudno, Michael, Cartagena, Rosario G., Crichlow, Monique, Courtney, Brian K., Loken, Chris, McGrail, Kimberlyn M., Ryan, Alex, Schull, Michael J., Thorogood, Adrian, Virtanen, Carl, Yang, Kathleen
Formato: Online Artículo Texto
Lenguaje:English
Publicado: Swansea University 2020
Materias:
Acceso en línea:https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7894384/
https://www.ncbi.nlm.nih.gov/pubmed/33644412
http://dx.doi.org/10.23889/ijpds.v5i1.1353